{"id":23377,"date":"2022-12-16T11:10:38","date_gmt":"2022-12-16T11:10:38","guid":{"rendered":"http:\/\/www.uwb.edu\/?p=23377"},"modified":"2023-08-07T11:48:07","modified_gmt":"2023-08-07T18:48:07","slug":"putting-patients-first-in-research","status":"publish","type":"post","link":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research","title":{"rendered":"Putting patients first in research"},"content":{"rendered":"\n

Even before the coronavirus pandemic, a 2016-18 National Survey of Children\u2019s Health reported that more than three million (12%) adolescents aged 12 to 17 had depression and\/or anxiety \u2014 and that suicide was the second leading cause of death among this age group.<\/p>\n\n\n\n

\"Hoa
Hoa Appel, lecturer, School of Nursing & Health Studies<\/figcaption><\/figure>\n\n\n\n

With a $100k grant from the Patient-Centered Outcomes Research Institute, Dr. Hoa Appel used a new patient-centered approach to study how the \u201cnew normal\u201d school environment during 足彩app哪个是正规的 impacted student mental health in Seattle-area schools.<\/p>\n\n\n\n

\u201cPCORI is one of the first organizations in the United States to include patients as part of research planning,\u201d said Appel, lecturer in the University of Washington Bothell\u2019s School of Nursing & Health Studies<\/a>. \u201cMany research projects do not include the people they want to study until after the planning phase or after the grant is funded.<\/p>\n\n\n\n

\u201cPCORI\u2019s main requirement for our study,\u201d she said, \u201cwas to include these folks in the conversation during the early stage.\u201d<\/p>\n\n\n\n

So Appel and Dr. Tyson Marsh, associate professor in the School of Educational Studies<\/a> and co-principal investigator, set out to answer how the coronavirus pandemic impacted student mental health and learning.<\/p>\n\n\n\n

A subject-centered methodology<\/h2>\n\n\n\n

As a means to best include subjects in the research planning and to facilitate discussion, Appel and Marsh established the Seattle Schools Consortium, which included middle- and high-school students \u2014 78% of which were students of color \u2014 as well as their families, principals and school staff.<\/p>\n\n\n\n

足彩app哪个是正规的 research team, which also included two UW Bothell alumni and one student research assistant, met online with the consortium every two months for a year to host in-depth discussions in a large group format, followed by small breakout groups.<\/p>\n\n\n\n

\"Tyson
Tyson Marsh, associate professor, School of Educational Studies<\/figcaption><\/figure>\n\n\n\n

Together, they explored the following questions:<\/p>\n\n\n\n

    \n
  • What are the main issues affecting students today, especially in the midst of 足彩app哪个是正规的?<\/li>\n\n\n\n
  • What are the issues that students and families care most about?<\/li>\n\n\n\n
  • What roles do schools and parents play in helping students navigate online school?<\/li>\n\n\n\n
  • What resources are available to support students, especially students of color, as they encounter new learning environments at home?<\/li>\n\n\n\n
  • In what ways can we improve students\u2019 social emotional learning and mental health outcomes?<\/li>\n<\/ul>\n\n\n\n

    Additionally, each K-12 student was tasked with a related research project on an aspect of mental health of their choosing, based on the patient-centered methodology.<\/p>\n\n\n\n

    To no one\u2019s surprise, the research showed that social isolation during the pandemic exacerbated the mental health challenges experienced by middle- and high-school students, particularly students of color.<\/p>\n\n\n\n

    Multiple factors impair student health<\/h2>\n\n\n\n

    Lack of access to resources and to the support of teachers, staff, extended family and friends significantly impacted how students were doing. Likewise, these students\u2019 limited ability to socialize with their peers also had significant bearing on their mental health and educational performance.<\/p>\n\n\n\n

    \u201c足彩app哪个是正规的s would say, \u2018I felt isolated, I want to be with my friends,\u2019\u201d said Appel. \u201c足彩app哪个是正规的y\u2019d also say, \u2018I don\u2019t like staying at home and going to school. It was great at first, but this really sucks now, you know?\u2019<\/p>\n\n\n\n

    \u201cAt home,\u201d she also noted, \u201cthey do not get the support that they do when they\u2019re at school in person with counselors, teachers and peers.\u201d<\/p>\n\n\n\n

    足彩app哪个是正规的 research team also found that COVID-related interruptions that destabilized society \u2014 such as unsettled housing and living conditions, uncertain nutritional quality and job loss for both students and parents \u2014 also impaired student mental health, again particularly for students of color.<\/p>\n\n\n\n

    Another finding was that students wanted more discussions around mental health to help them to feel acknowledged in their struggles. Some participants said that, before the study, they believed that no one cared about them. One student involved in the study said, \u201cI was able to share my opinions without judgment, and it made me feel better.\u201d<\/p>\n\n\n\n

    By design, Appel said, the study engaged students who were the subjects of the study as the best way to hear and understand their concerns. \u201cBy focusing on the students and their experiences during the study, we could better address their needs as we went along.\u201d<\/p>\n\n\n\n

    Study teaches new research skills<\/h2>\n\n\n\n

    Both students and school staff working on this project gained skills in the basics of research, the foundations of patient-centered engagement and the principles of collaboration. Applying this methodology to mental health, they also learned how to more proactively approach the subject.<\/p>\n\n\n\n

    For example, the study gave staff the language and tools to better support students, who in turn through their assignments considered ways to improve discussions around well-being. One high school student has begun the process to start a mentoring program for incoming ninth graders to help them better adjust to high school life.<\/p>\n\n\n\n

    Amid all the successes of this study, there were also challenges that the team had to overcome. For one, some researchers and participants contracted 足彩app哪个是正规的, leading to a delay in consortium meetings. Likewise, some students in the study struggled to attend meetings and turn in assignments on time due to their mental health and other COVID-related issues in their families, including family illness and transportation access.<\/p>\n\n\n\n

    \u201cBecause we were testing the patient-centered methodology, we had to manage the challenges of our participants\u2019 lives outside of the group,\u201d Appel said. \u201cOne student was disconnected from their family and was not doing well in school, a prime example of mental health affects.\u201d<\/p>\n\n\n\n

    Additionally, students of color and their families disproportionately struggled with coronavirus-related factors and structural racism, which impacted their participation in the study and their overall mental and emotional health.<\/p>\n\n\n\n

    \u201c足彩app哪个是正规的s of color spoke out about social justice and racial inequality as part of their everyday lives,\u201d said Appel. \u201cOthers\u2019 lack of understanding that COVID-29 disproportionately affected them posed challenges to these students and their families.<\/p>\n\n\n\n

    \u201cIn terms of the study, they were not meeting milestones for their assignments. At school they were distracted by being online. And,\u201d she said, \u201cthey couldn\u2019t be with their community.\u201d<\/p>\n\n\n\n

    Future research and publication<\/h2>\n\n\n\n

    While some of their findings were expected, Appel said she was surprised that many of the students were so open about their experiences and that they were \u201cbored\u201d with their iPhones.<\/p>\n\n\n\n

    \u201c足彩app哪个是正规的s were willing to share, especially in small Zoom breakout rooms, stuff that they would probably share with their therapist,\u201d she said. \u201cAnd they said they were getting tired of technology! I thought they loved this stuff!\u201d<\/p>\n\n\n\n

    Based on the students\u2019 responses during this first patient-centered research study, Appel and Marsh now have another set of questions to pursue and are looking for funding for additional projects. Until then, they look forward to their research findings to appear in the journal Educational Research in the spring.<\/p>\n","protected":false},"excerpt":{"rendered":"

    A team led by Dr. Hoa Appel conducted a study on student mental health during the pandemic using a new patient-centered research methodology.<\/p>\n","protected":false},"author":6,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_is_archived":false,"_archived_contact_email":"","footnotes":""},"categories":[209,218,229,197,252,204],"tags":[],"school":[420],"class_list":["post-23377","post","type-post","status-publish","format-standard","hentry","category-alumni","category-community-engagement","category-faculty","category-news-releases","category-population-health","category-students","school-school-of-nhs"],"acf":{"related_links":{"toggle_visibility":false,"link_1":"","link_2":"","link_3":"","link_4":"","link_5":""},"highlight_box":{"toggle_visibility":false,"title":"","content":"","button":"","button_style":"angled-purple-button","button_screen_reader_text":""},"contact_type_1":{"toggle_visibility":true,"contact_title":"Contact Type","email":"sample@uwb.edu","phone":"(206) 999-9999","box":"Box 358500","address_line_1":"18115 Campus Way NE","address_line_2":"Bothell, WA 98011-8246","location":""},"contact_type_2":{"toggle_visibility":false,"contact_title":"","email":"","phone":"","box":"","address_line_1":"","address_line_2":"","location":""},"social_media":{"toggle_visibility":false,"facebook_url":"","instagram_url":"","linkedin_url":"","twitter_url":"","youtube_url":""},"blog_archive_sidebar_visibility":false},"yoast_head":"\nPutting patients first in research - News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Putting patients first in research - News\" \/>\n<meta property=\"og:description\" content=\"A team led by Dr. Hoa Appel conducted a study on student mental health during the pandemic using a new patient-centered research methodology.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\" \/>\n<meta property=\"og:site_name\" content=\"News\" \/>\n<meta property=\"article:published_time\" content=\"2022-12-16T11:10:38+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-08-07T18:48:07+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\"},\"author\":{\"name\":\"\",\"@id\":\"\"},\"headline\":\"Putting patients first in research\",\"datePublished\":\"2022-12-16T11:10:38+00:00\",\"dateModified\":\"2023-08-07T18:48:07+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\"},\"wordCount\":1112,\"articleSection\":[\"Alumni\",\"Community Engagement\",\"Faculty\",\"News Releases\",\"Population Health\",\"足彩app哪个是正规的s\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\",\"url\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\",\"name\":\"Putting patients first in research - News\",\"isPartOf\":{\"@id\":\"https:\/\/www.uwb.edu\/news\/#website\"},\"datePublished\":\"2022-12-16T11:10:38+00:00\",\"dateModified\":\"2023-08-07T18:48:07+00:00\",\"author\":{\"@id\":\"\"},\"breadcrumb\":{\"@id\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.uwb.edu\/news\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Putting patients first in research\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.uwb.edu\/news\/#website\",\"url\":\"https:\/\/www.uwb.edu\/news\/\",\"name\":\"News\",\"description\":\"Just another UW Bothell site\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.uwb.edu\/news\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"\",\"url\":\"https:\/\/www.uwb.edu\/news\/author\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Putting patients first in research - News","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research","og_locale":"en_US","og_type":"article","og_title":"Putting patients first in research - News","og_description":"A team led by Dr. Hoa Appel conducted a study on student mental health during the pandemic using a new patient-centered research methodology.","og_url":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research","og_site_name":"News","article_published_time":"2022-12-16T11:10:38+00:00","article_modified_time":"2023-08-07T18:48:07+00:00","twitter_card":"summary_large_image","twitter_misc":{"Written by":"","Est. reading time":"6 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research#article","isPartOf":{"@id":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research"},"author":{"name":"","@id":""},"headline":"Putting patients first in research","datePublished":"2022-12-16T11:10:38+00:00","dateModified":"2023-08-07T18:48:07+00:00","mainEntityOfPage":{"@id":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research"},"wordCount":1112,"articleSection":["Alumni","Community Engagement","Faculty","News Releases","Population Health","足彩app哪个是正规的s"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research","url":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research","name":"Putting patients first in research - News","isPartOf":{"@id":"https:\/\/www.uwb.edu\/news\/#website"},"datePublished":"2022-12-16T11:10:38+00:00","dateModified":"2023-08-07T18:48:07+00:00","author":{"@id":""},"breadcrumb":{"@id":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/www.uwb.edu\/news\/2022\/12\/16\/putting-patients-first-in-research#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.uwb.edu\/news\/"},{"@type":"ListItem","position":2,"name":"Putting patients first in research"}]},{"@type":"WebSite","@id":"https:\/\/www.uwb.edu\/news\/#website","url":"https:\/\/www.uwb.edu\/news\/","name":"News","description":"Just another UW Bothell site","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.uwb.edu\/news\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Person","@id":"","url":"https:\/\/www.uwb.edu\/news\/author"}]}},"_links":{"self":[{"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/posts\/23377","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/comments?post=23377"}],"version-history":[{"count":4,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/posts\/23377\/revisions"}],"predecessor-version":[{"id":29341,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/posts\/23377\/revisions\/29341"}],"wp:attachment":[{"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/media?parent=23377"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/categories?post=23377"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/tags?post=23377"},{"taxonomy":"school","embeddable":true,"href":"https:\/\/www.uwb.edu\/news\/wp-json\/wp\/v2\/school?post=23377"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}